Tara Burton has been living with Hidradenitis Suppurativa, a chronic skin disease, for over twenty years – and today she runs the HS Trust, http://www.hstrust.org/. It is a leading organisation for providing HS awareness, education and support. She is a well-known figure in the HS community and she works globally with the HS Trust, using mainly digital tools to connect with people and connect people with one another.

She took the stage to talk about the importance of patient included healthcare and engagement at an early stage is vital, as well as how Big Data and digital media can be a vital part of any treatment – from a patient’s perspective.